Uterine Fibroids

in General

You may have noticed in my last post when I mentioned that I needed major surgery I was pretty ambiguous about the whole thing. When I wrote the post I wasn’t quite sure if I wanted to share the intimate details of what is happening to me. However, after contemplation I realized that by sharing my story perhaps I can help others and they can be on the look out for signs and symptoms. As the title of this post suggests, I am having surgery on my uterus. It is a tricky situation because fertility and the ability to reproduce are things that I and many women hold dear to their hearts. Although I am not planning to have a child anytime soon, I do value my ability to do so. And uterine fibroids can sometimes get in the way. Especially when given the option of full hysterectomy or myomectomy. But I’m getting ahead of myself. Let me explain.

webmd_rf_photo_of_illustration_of_uterus

photo credit: WebMD 

Uterine fibroids are noncancerous growths of the muscle tissue in the uterus. 70% to 80% of all women will develop fibroids by age 50. However, they are most common in black women and generally develop between the ages of 30-40. The risk for fibroids is also increased if you have a familial history of them. Many women are completely unaware that they have fibroids until they are told by their physician. When fibroids are not problematic, the general advice is to watch them because the can grow and multiply. I was first diagnosed with fibroids many years ago and my doctor would give me periodical sonograms to watch their growth. I didn’t have any of the problems associated with fibroids like heavy menstrual bleeding, spotting between periods, distended stomach. Nada. But about a year and a half after my diagnosis, I was in excruciating pain that generated from my lower back and abdomen into my legs.

It wasn’t a consistent pain but after about a week I woke up in the middle of the night praying to God to take the pain away. The next day I went to the hospital and it was revealed that my fibroids had multiplyed and grown like crazy. And I was told my pain was probably being caused by one or more of my fibroids “dying” and having an effect similar to a heart attack in my uterus. To avoid any future occurances of such attacks my doctor and I decided that removal was the best option. I went under the knife with the full knowledge that I’d be unable to have a natural childbirth but I tell you  the sacrifice was worth it. The pain I experienced I can now say was similar to labor contractions, maybe worse!

My surgery was called a myomectomy and the doctor did a bikini cut and went in to remove all the fibroids. Because of the sheer number of fibroids in my uterus he was unable to remove all of them but he got the largest which was the size of a naval orange and others. During my pregnancy 2 years later, my doctors watched my fibroids but they behaved and caused me no problems.

Fast forward to recent times. My body told me something was wrong when I experienced the never ending period. When I say NEVER ending, I mean NEVER. During my visit to the doctor last week my sonogram showed a 3 cm fibroid right above my cervix which is the likely cause of my problem. I was given the option of hysterectomy  - full removal of my uterus which would take care of the fibroid problem forever or myomectomy. Of course, I can take the wait and see approach but my quality of life has truly been diminished and I can’t continue to live this way. Other options like the pill simply won’t work for me because estrogen causes me to be hypertensive and that risk is not worth the reward.

So, on March 18th I will once again have surgery. I’m not frightened about it because I now have the answer to why I’ve been having so many problems. And although I rarely ask, friends and family have generously offered to help me out during my six week recovery period. For once I am going to have to really take off my Superwoman cape and have the assistance I need. And funny enough, this might be more frightening than the surgery itself! I’ll be sure to keep you posted about my progress. But in the meantime if you want to read more about fibroids here are some resources you might find helpful:

It’s a Sistah Thing: A guide to understanding and dealing with fibroids for Black Woman

What your doctor may not tell you about uterine fibroids

Uterine Fibroids – WebMD

Have you been diagnosed with fibroids or do you know someone who has? Please share any resources or information that is helpful in the comments. I’d really appreciate it!

{ 12 comments… read them below or add one }

Frank Ullman February 20, 2013 at 4:04 pm

Thank you for sharing and for educating me. You continue to amaze me. Best wishes.

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reneeross February 20, 2013 at 7:04 pm

Thanks for reading and caring! xoxo

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Carolyn G February 20, 2013 at 6:59 pm

I hope all goes well Renee. Sending healing vibes.

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reneeross February 20, 2013 at 7:01 pm

Thank you Carolyn!

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Erica Mueller February 20, 2013 at 7:25 pm

I have a friend who has suffered a lot from this so while I can’t say I’ve been there I do understand and will be thinking of you during this time!

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reneeross February 20, 2013 at 7:35 pm

Thank you Erica!

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tonya February 20, 2013 at 10:43 pm

Like you Renee, I am a runner and I have been talkjng with my gyne about removing fibroids as well. Question after the procedure how long will it be before you can run another marathon. I am registered for two marathons this year

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reneeross February 21, 2013 at 6:55 am

Hi Tonya. I know that there is a 6 week recovery time. No driving for the first 2 weeks and moderate activity for the following four. Walking is fine but no vacuuminng during that time. After 6 weeks there is clearance for sex, exercise, etc. as long as there are no complications. The procedure is basically a c-section. I wasn’t a runner the last two times I had the surgery but I’m pretty sure after the recovery period I can start running again. But to be sure, ask your doctor that question.

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Jaquice February 20, 2013 at 11:43 pm

Renee I can totally relate to this problem. I have one and it measured 7 cm four years ago…I recently went to the doctor’s office to see what’s going on because I had been in so much pain and unlike you my cycle is horrible. In my mind I feel like it has grown or others have formed as well but I won’t know anything until I go back on the 28th….
praying that you have a speedy & safe recovery

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reneeross February 21, 2013 at 6:56 am

Oh wow. My Dr is great. If you are searching for one I’ll give you his number. He did my sonogram right in the office – he did it, not a tech – and talked about my options immediately. I wish you luck and if you have any questions please feel free to ask me.

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joann ortiz February 22, 2013 at 6:49 pm

please be careful. I had two myectomies. when the pain came back a THIRD Time i brushed it off – didnt want to go through that again. when i passed out in the bathroom from hemmoraging -period came down too much and too fast and i ended up in the hospital with no other recourse BUT to have a partial hysterectomy i listened to my body. Let me tell you – its not fun. once they start to mess with you body like removing female body parts YOU WILL GO INTO MENOPAUSE. dont believe the hype when they say “oh you wont get hot flashes for years. Yeah trying telling me that crap when im sitting on the train in the middle of the winter taking my clothes off and people are staring at me. please be careful and make sure that you have no other recourse but to do the surgery. I didnt have any other choice.

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Caryl Rion March 5, 2013 at 12:23 pm

Glad you shared this Renee. I had a similar problems but my grapefruit sized fibroid (we’ll call him Fernando), had grown in my cervix and was causing many issues including anemia and severe diverticulitus in my colon. After much contimplation, I decided to have a full hysterectomy last September. Well, Fernando had been a small blessing because I had abnormal cells in my cervix, which was ultimately removed as well…….

Post-op six months later and I have never felt better. I’m back to running, cycling and swimming, and will be back at Reggae in December!

Wishing you well and I will keep you in my prayers!
Caryl

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